Toddler fights for access to “World’s Most Expensive Drug”


MOTHER MOTHER HAS MOTHER HAS A MOTHER HAS A COUPLE MOTHER HAS A COUPLE WEEKS MOTHER HAS A COUPLE WEEKS TO MOTHER HAS A COUPLE WEEKS TO
CHANGE MOTHER HAS A COUPLE WEEKS TO
CHANGE THEIR MOTHER HAS A COUPLE WEEKS TO
CHANGE THEIR MIND. CHANGE THEIR MIND. CHANGE THEIR MIND.
TURNING CHANGE THEIR MIND.
TURNING TWO-YEARS-OLD CHANGE THEIR MIND.
TURNING TWO-YEARS-OLD IS CHANGE THEIR MIND.
TURNING TWO-YEARS-OLD IS MORE CHANGE THEIR MIND.
TURNING TWO-YEARS-OLD IS MORE A TURNING TWO-YEARS-OLD IS MORE A TURNING TWO-YEARS-OLD IS MORE A
DEADLINE TURNING TWO-YEARS-OLD IS MORE A
DEADLINE THAN TURNING TWO-YEARS-OLD IS MORE A
DEADLINE THAN A TURNING TWO-YEARS-OLD IS MORE A
DEADLINE THAN A CELEBRATION TURNING TWO-YEARS-OLD IS MORE A
DEADLINE THAN A CELEBRATION FOR DEADLINE THAN A CELEBRATION FOR DEADLINE THAN A CELEBRATION FOR
MATTIE DEADLINE THAN A CELEBRATION FOR
MATTIE SMITH. MATTIE SMITH. MATTIE SMITH.
>>MATTIE SMITH.
>>WE MATTIE SMITH.
>>WE HAVE MATTIE SMITH.
>>WE HAVE LESS MATTIE SMITH.
>>WE HAVE LESS THAN MATTIE SMITH.
>>WE HAVE LESS THAN THREE>>WE HAVE LESS THAN THREE>>WE HAVE LESS THAN THREE
WEEKS. WEEKS. WEEKS.
>>WEEKS.
>>Reporter: WEEKS.
>>Reporter: IT WEEKS.
>>Reporter: IT IS WEEKS.
>>Reporter: IT IS WHEN WEEKS.
>>Reporter: IT IS WHEN SHE>>Reporter: IT IS WHEN SHE>>Reporter: IT IS WHEN SHE
WILL>>Reporter: IT IS WHEN SHE
WILL BE>>Reporter: IT IS WHEN SHE
WILL BE TOO>>Reporter: IT IS WHEN SHE
WILL BE TOO OLD>>Reporter: IT IS WHEN SHE
WILL BE TOO OLD TO>>Reporter: IT IS WHEN SHE
WILL BE TOO OLD TO GET>>Reporter: IT IS WHEN SHE
WILL BE TOO OLD TO GET THE WILL BE TOO OLD TO GET THE WILL BE TOO OLD TO GET THE
MEDICINE WILL BE TOO OLD TO GET THE
MEDICINE THAT WILL BE TOO OLD TO GET THE
MEDICINE THAT COULD WILL BE TOO OLD TO GET THE
MEDICINE THAT COULD CURE WILL BE TOO OLD TO GET THE
MEDICINE THAT COULD CURE HER. MEDICINE THAT COULD CURE HER. MEDICINE THAT COULD CURE HER.
>>MEDICINE THAT COULD CURE HER.
>>THE MEDICINE THAT COULD CURE HER.
>>THE CUT MEDICINE THAT COULD CURE HER.
>>THE CUT OFF MEDICINE THAT COULD CURE HER.
>>THE CUT OFF IS MEDICINE THAT COULD CURE HER.
>>THE CUT OFF IS TWO-YEARS->>THE CUT OFF IS TWO-YEARS->>THE CUT OFF IS TWO-YEARS-
OLD. OLD. OLD.
>>OLD.
>>Reporter: OLD.
>>Reporter: THAT OLD.
>>Reporter: THAT DRUG OLD.
>>Reporter: THAT DRUG APPROVED>>Reporter: THAT DRUG APPROVED>>Reporter: THAT DRUG APPROVED
BY>>Reporter: THAT DRUG APPROVED
BY THE>>Reporter: THAT DRUG APPROVED
BY THE FDA. BY THE FDA. BY THE FDA.
>>BY THE FDA.
>>SHE BY THE FDA.
>>SHE IS BY THE FDA.
>>SHE IS ALMOST BY THE FDA.
>>SHE IS ALMOST TWO.>>SHE IS ALMOST TWO.>>SHE IS ALMOST TWO.
>>>>SHE IS ALMOST TWO.
>>THE>>SHE IS ALMOST TWO.
>>THE MOST>>SHE IS ALMOST TWO.
>>THE MOST EXPENSIVE>>SHE IS ALMOST TWO.
>>THE MOST EXPENSIVE DRUG>>SHE IS ALMOST TWO.
>>THE MOST EXPENSIVE DRUG IN>>THE MOST EXPENSIVE DRUG IN>>THE MOST EXPENSIVE DRUG IN
THE>>THE MOST EXPENSIVE DRUG IN
THE WORLD. THE WORLD. THE WORLD.
>>THE WORLD.
>>IT THE WORLD.
>>IT IS THE WORLD.
>>IT IS JUST THE WORLD.
>>IT IS JUST MIND THE WORLD.
>>IT IS JUST MIND BLOWING.>>IT IS JUST MIND BLOWING.>>IT IS JUST MIND BLOWING.
>>>>IT IS JUST MIND BLOWING.
>>Reporter:>>IT IS JUST MIND BLOWING.
>>Reporter: AND>>IT IS JUST MIND BLOWING.
>>Reporter: AND SO>>IT IS JUST MIND BLOWING.
>>Reporter: AND SO FAR>>IT IS JUST MIND BLOWING.
>>Reporter: AND SO FAR HER>>Reporter: AND SO FAR HER>>Reporter: AND SO FAR HER
INSURANCE>>Reporter: AND SO FAR HER
INSURANCE THROUGH>>Reporter: AND SO FAR HER
INSURANCE THROUGH STATE>>Reporter: AND SO FAR HER
INSURANCE THROUGH STATE OF INSURANCE THROUGH STATE OF INSURANCE THROUGH STATE OF
MINNESOTA INSURANCE THROUGH STATE OF
MINNESOTA REFUSED INSURANCE THROUGH STATE OF
MINNESOTA REFUSED TO INSURANCE THROUGH STATE OF
MINNESOTA REFUSED TO COVER INSURANCE THROUGH STATE OF
MINNESOTA REFUSED TO COVER IT. MINNESOTA REFUSED TO COVER IT. MINNESOTA REFUSED TO COVER IT.
ANGIE MINNESOTA REFUSED TO COVER IT.
ANGIE LEARNED MINNESOTA REFUSED TO COVER IT.
ANGIE LEARNED HER MINNESOTA REFUSED TO COVER IT.
ANGIE LEARNED HER DAUGHTER MINNESOTA REFUSED TO COVER IT.
ANGIE LEARNED HER DAUGHTER HAD ANGIE LEARNED HER DAUGHTER HAD ANGIE LEARNED HER DAUGHTER HAD
SMA ANGIE LEARNED HER DAUGHTER HAD
SMA BEFORE ANGIE LEARNED HER DAUGHTER HAD
SMA BEFORE SHE ANGIE LEARNED HER DAUGHTER HAD
SMA BEFORE SHE WAS ANGIE LEARNED HER DAUGHTER HAD
SMA BEFORE SHE WAS BORN. SMA BEFORE SHE WAS BORN. SMA BEFORE SHE WAS BORN.
>>SMA BEFORE SHE WAS BORN.
>>I SMA BEFORE SHE WAS BORN.
>>I JUST SMA BEFORE SHE WAS BORN.
>>I JUST — SMA BEFORE SHE WAS BORN.
>>I JUST — I SMA BEFORE SHE WAS BORN.
>>I JUST — I COULDN’T SMA BEFORE SHE WAS BORN.
>>I JUST — I COULDN’T TALK SMA BEFORE SHE WAS BORN.
>>I JUST — I COULDN’T TALK ON>>I JUST — I COULDN’T TALK ON>>I JUST — I COULDN’T TALK ON
THE>>I JUST — I COULDN’T TALK ON
THE PHONE. THE PHONE. THE PHONE.
>>THE PHONE.
>>Reporter: THE PHONE.
>>Reporter: IT THE PHONE.
>>Reporter: IT IS THE PHONE.
>>Reporter: IT IS A THE PHONE.
>>Reporter: IT IS A GENETIC>>Reporter: IT IS A GENETIC>>Reporter: IT IS A GENETIC
DISEASE>>Reporter: IT IS A GENETIC
DISEASE THAT>>Reporter: IT IS A GENETIC
DISEASE THAT LEADS>>Reporter: IT IS A GENETIC
DISEASE THAT LEADS TO>>Reporter: IT IS A GENETIC
DISEASE THAT LEADS TO DEATH>>Reporter: IT IS A GENETIC
DISEASE THAT LEADS TO DEATH IN DISEASE THAT LEADS TO DEATH IN DISEASE THAT LEADS TO DEATH IN
THE DISEASE THAT LEADS TO DEATH IN
THE WORST DISEASE THAT LEADS TO DEATH IN
THE WORST CASES. THE WORST CASES. THE WORST CASES.
>>THE WORST CASES.
>>I THE WORST CASES.
>>I THOUGHT THE WORST CASES.
>>I THOUGHT WE THE WORST CASES.
>>I THOUGHT WE WOULD THE WORST CASES.
>>I THOUGHT WE WOULD LOSE THE WORST CASES.
>>I THOUGHT WE WOULD LOSE HER.>>I THOUGHT WE WOULD LOSE HER.>>I THOUGHT WE WOULD LOSE HER.
>>>>I THOUGHT WE WOULD LOSE HER.
>>Reporter:>>I THOUGHT WE WOULD LOSE HER.
>>Reporter: BUT>>I THOUGHT WE WOULD LOSE HER.
>>Reporter: BUT A>>I THOUGHT WE WOULD LOSE HER.
>>Reporter: BUT A DRUG>>I THOUGHT WE WOULD LOSE HER.
>>Reporter: BUT A DRUG CHANGED>>Reporter: BUT A DRUG CHANGED>>Reporter: BUT A DRUG CHANGED
THAT. THAT. THAT.
KEEPING THAT.
KEEPING MOST THAT.
KEEPING MOST SYMPTOMS THAT.
KEEPING MOST SYMPTOMS AT THAT.
KEEPING MOST SYMPTOMS AT BAY. KEEPING MOST SYMPTOMS AT BAY. KEEPING MOST SYMPTOMS AT BAY.
>>KEEPING MOST SYMPTOMS AT BAY.
>>AND KEEPING MOST SYMPTOMS AT BAY.
>>AND I KEEPING MOST SYMPTOMS AT BAY.
>>AND I THINK KEEPING MOST SYMPTOMS AT BAY.
>>AND I THINK IT KEEPING MOST SYMPTOMS AT BAY.
>>AND I THINK IT — KEEPING MOST SYMPTOMS AT BAY.
>>AND I THINK IT — IT KEEPING MOST SYMPTOMS AT BAY.
>>AND I THINK IT — IT HAS>>AND I THINK IT — IT HAS>>AND I THINK IT — IT HAS
BEEN>>AND I THINK IT — IT HAS
BEEN LIFE>>AND I THINK IT — IT HAS
BEEN LIFE CHANGING. BEEN LIFE CHANGING. BEEN LIFE CHANGING.
>>BEEN LIFE CHANGING.
>>Reporter: BEEN LIFE CHANGING.
>>Reporter: LIFE BEEN LIFE CHANGING.
>>Reporter: LIFE CHANGING BEEN LIFE CHANGING.
>>Reporter: LIFE CHANGING BUT>>Reporter: LIFE CHANGING BUT>>Reporter: LIFE CHANGING BUT
HARD. HARD. HARD.
>>HARD.
>>UNDERGOING HARD.
>>UNDERGOING THE>>UNDERGOING THE>>UNDERGOING THE
INJECTIONICIZE>>UNDERGOING THE
INJECTIONICIZE REALLY>>UNDERGOING THE
INJECTIONICIZE REALLY HARD>>UNDERGOING THE
INJECTIONICIZE REALLY HARD ON INJECTIONICIZE REALLY HARD ON INJECTIONICIZE REALLY HARD ON
HER INJECTIONICIZE REALLY HARD ON
HER LITTLE INJECTIONICIZE REALLY HARD ON
HER LITTLE BODY INJECTIONICIZE REALLY HARD ON
HER LITTLE BODY AND INJECTIONICIZE REALLY HARD ON
HER LITTLE BODY AND SPIRIT. HER LITTLE BODY AND SPIRIT. HER LITTLE BODY AND SPIRIT.
>>HER LITTLE BODY AND SPIRIT.
>>Reporter: HER LITTLE BODY AND SPIRIT.
>>Reporter: IT HER LITTLE BODY AND SPIRIT.
>>Reporter: IT REQUIRES HER LITTLE BODY AND SPIRIT.
>>Reporter: IT REQUIRES SPINAL>>Reporter: IT REQUIRES SPINAL>>Reporter: IT REQUIRES SPINAL
INJECTIONS>>Reporter: IT REQUIRES SPINAL
INJECTIONS THREE>>Reporter: IT REQUIRES SPINAL
INJECTIONS THREE TIMES>>Reporter: IT REQUIRES SPINAL
INJECTIONS THREE TIMES A>>Reporter: IT REQUIRES SPINAL
INJECTIONS THREE TIMES A YEAR INJECTIONS THREE TIMES A YEAR INJECTIONS THREE TIMES A YEAR
FOR INJECTIONS THREE TIMES A YEAR
FOR THE INJECTIONS THREE TIMES A YEAR
FOR THE REST INJECTIONS THREE TIMES A YEAR
FOR THE REST OF INJECTIONS THREE TIMES A YEAR
FOR THE REST OF HER INJECTIONS THREE TIMES A YEAR
FOR THE REST OF HER LIFE. FOR THE REST OF HER LIFE. FOR THE REST OF HER LIFE.
>>FOR THE REST OF HER LIFE.
>>I FOR THE REST OF HER LIFE.
>>I FIGHT FOR THE REST OF HER LIFE.
>>I FIGHT BACK FOR THE REST OF HER LIFE.
>>I FIGHT BACK TEARS FOR THE REST OF HER LIFE.
>>I FIGHT BACK TEARS EVERY>>I FIGHT BACK TEARS EVERY>>I FIGHT BACK TEARS EVERY
TIME. TIME. TIME.
JUST TIME.
JUST BECAUSE TIME.
JUST BECAUSE IT TIME.
JUST BECAUSE IT IS TIME.
JUST BECAUSE IT IS SO JUST BECAUSE IT IS SO JUST BECAUSE IT IS SO
TRAUMATIZING JUST BECAUSE IT IS SO
TRAUMATIZING FOR JUST BECAUSE IT IS SO
TRAUMATIZING FOR HER. TRAUMATIZING FOR HER. TRAUMATIZING FOR HER.
>>TRAUMATIZING FOR HER.
>>Reporter: TRAUMATIZING FOR HER.
>>Reporter: SO TRAUMATIZING FOR HER.
>>Reporter: SO FAR TRAUMATIZING FOR HER.
>>Reporter: SO FAR IT TRAUMATIZING FOR HER.
>>Reporter: SO FAR IT IS>>Reporter: SO FAR IT IS>>Reporter: SO FAR IT IS
WORKING. WORKING. WORKING.
ALLOWING WORKING.
ALLOWING THERE WORKING.
ALLOWING THERE BREATHES WORKING.
ALLOWING THERE BREATHES ON WORKING.
ALLOWING THERE BREATHES ON HER ALLOWING THERE BREATHES ON HER ALLOWING THERE BREATHES ON HER
OWN ALLOWING THERE BREATHES ON HER
OWN AND ALLOWING THERE BREATHES ON HER
OWN AND PULL ALLOWING THERE BREATHES ON HER
OWN AND PULL HERSELF ALLOWING THERE BREATHES ON HER
OWN AND PULL HERSELF UP. OWN AND PULL HERSELF UP. OWN AND PULL HERSELF UP.
BUT OWN AND PULL HERSELF UP.
BUT IT OWN AND PULL HERSELF UP.
BUT IT IS OWN AND PULL HERSELF UP.
BUT IT IS NOT OWN AND PULL HERSELF UP.
BUT IT IS NOT A OWN AND PULL HERSELF UP.
BUT IT IS NOT A CURE. BUT IT IS NOT A CURE. BUT IT IS NOT A CURE.
A BUT IT IS NOT A CURE.
A ONE BUT IT IS NOT A CURE.
A ONE TIME BUT IT IS NOT A CURE.
A ONE TIME TREATMENT BUT IT IS NOT A CURE.
A ONE TIME TREATMENT COULD BUT IT IS NOT A CURE.
A ONE TIME TREATMENT COULD BE A ONE TIME TREATMENT COULD BE A ONE TIME TREATMENT COULD BE
IN A ONE TIME TREATMENT COULD BE
IN THE A ONE TIME TREATMENT COULD BE
IN THE LONG A ONE TIME TREATMENT COULD BE
IN THE LONG RUN A ONE TIME TREATMENT COULD BE
IN THE LONG RUN BUT A ONE TIME TREATMENT COULD BE
IN THE LONG RUN BUT THE A ONE TIME TREATMENT COULD BE
IN THE LONG RUN BUT THE INITIAL IN THE LONG RUN BUT THE INITIAL IN THE LONG RUN BUT THE INITIAL
$2 IN THE LONG RUN BUT THE INITIAL
$2 MILLION IN THE LONG RUN BUT THE INITIAL
$2 MILLION PRICE IN THE LONG RUN BUT THE INITIAL
$2 MILLION PRICE TAG IN THE LONG RUN BUT THE INITIAL
$2 MILLION PRICE TAG IS IN THE LONG RUN BUT THE INITIAL
$2 MILLION PRICE TAG IS RAISING $2 MILLION PRICE TAG IS RAISING $2 MILLION PRICE TAG IS RAISING
ETHICAL $2 MILLION PRICE TAG IS RAISING
ETHICAL DILEMMAS. ETHICAL DILEMMAS. ETHICAL DILEMMAS.
WHAT ETHICAL DILEMMAS.
WHAT IS ETHICAL DILEMMAS.
WHAT IS A ETHICAL DILEMMAS.
WHAT IS A CURE ETHICAL DILEMMAS.
WHAT IS A CURE WORTH? WHAT IS A CURE WORTH? WHAT IS A CURE WORTH?
>>WHAT IS A CURE WORTH?
>>IT WHAT IS A CURE WORTH?
>>IT IS WHAT IS A CURE WORTH?
>>IT IS HER WHAT IS A CURE WORTH?
>>IT IS HER LIFE.>>IT IS HER LIFE.>>IT IS HER LIFE.
>>>>IT IS HER LIFE.
>>Reporter:>>IT IS HER LIFE.
>>Reporter: IN>>IT IS HER LIFE.
>>Reporter: IN A>>IT IS HER LIFE.
>>Reporter: IN A STATEMENT>>IT IS HER LIFE.
>>Reporter: IN A STATEMENT THE>>Reporter: IN A STATEMENT THE>>Reporter: IN A STATEMENT THE
MINNESOTA>>Reporter: IN A STATEMENT THE
MINNESOTA DEPARTMENT>>Reporter: IN A STATEMENT THE
MINNESOTA DEPARTMENT OF>>Reporter: IN A STATEMENT THE
MINNESOTA DEPARTMENT OF HUMAN MINNESOTA DEPARTMENT OF HUMAN MINNESOTA DEPARTMENT OF HUMAN
SERVICES MINNESOTA DEPARTMENT OF HUMAN
SERVICES POINTED MINNESOTA DEPARTMENT OF HUMAN
SERVICES POINTED TO MINNESOTA DEPARTMENT OF HUMAN
SERVICES POINTED TO CONCERNS MINNESOTA DEPARTMENT OF HUMAN
SERVICES POINTED TO CONCERNS BY SERVICES POINTED TO CONCERNS BY SERVICES POINTED TO CONCERNS BY
THE SERVICES POINTED TO CONCERNS BY
THE FDA SERVICES POINTED TO CONCERNS BY
THE FDA SAYING SERVICES POINTED TO CONCERNS BY
THE FDA SAYING THEY SERVICES POINTED TO CONCERNS BY
THE FDA SAYING THEY WILL THE FDA SAYING THEY WILL THE FDA SAYING THEY WILL
PROMOTE THE FDA SAYING THEY WILL
PROMOTE THE THE FDA SAYING THEY WILL
PROMOTE THE USE THE FDA SAYING THEY WILL
PROMOTE THE USE OF THE FDA SAYING THEY WILL
PROMOTE THE USE OF OTHER PROMOTE THE USE OF OTHER PROMOTE THE USE OF OTHER
TREATMENTS PROMOTE THE USE OF OTHER
TREATMENTS THAT PROMOTE THE USE OF OTHER
TREATMENTS THAT HAVE PROMOTE THE USE OF OTHER
TREATMENTS THAT HAVE PROVEN PROMOTE THE USE OF OTHER
TREATMENTS THAT HAVE PROVEN TO TREATMENTS THAT HAVE PROVEN TO TREATMENTS THAT HAVE PROVEN TO
BE TREATMENTS THAT HAVE PROVEN TO
BE EFFECTIVE. BE EFFECTIVE. BE EFFECTIVE.
THE BE EFFECTIVE.
THE FDA BE EFFECTIVE.
THE FDA SAID BE EFFECTIVE.
THE FDA SAID SCIENTISTS THE FDA SAID SCIENTISTS THE FDA SAID SCIENTISTS
MANIPULATED THE FDA SAID SCIENTISTS
MANIPULATED TEST THE FDA SAID SCIENTISTS
MANIPULATED TEST DATA THE FDA SAID SCIENTISTS
MANIPULATED TEST DATA BUT THE FDA SAID SCIENTISTS
MANIPULATED TEST DATA BUT THE MANIPULATED TEST DATA BUT THE MANIPULATED TEST DATA BUT THE
FDA MANIPULATED TEST DATA BUT THE
FDA ALSO MANIPULATED TEST DATA BUT THE
FDA ALSO SAID MANIPULATED TEST DATA BUT THE
FDA ALSO SAID IT MANIPULATED TEST DATA BUT THE
FDA ALSO SAID IT BELIEVES MANIPULATED TEST DATA BUT THE
FDA ALSO SAID IT BELIEVES THE FDA ALSO SAID IT BELIEVES THE FDA ALSO SAID IT BELIEVES THE
DRUG FDA ALSO SAID IT BELIEVES THE
DRUG IS FDA ALSO SAID IT BELIEVES THE
DRUG IS SAFE. DRUG IS SAFE. DRUG IS SAFE.
SHE DRUG IS SAFE.
SHE HAS DRUG IS SAFE.
SHE HAS APPEALED DRUG IS SAFE.
SHE HAS APPEALED AGAIN. SHE HAS APPEALED AGAIN. SHE HAS APPEALED AGAIN.
>>SHE HAS APPEALED AGAIN.
>>IT SHE HAS APPEALED AGAIN.
>>IT MAKES SHE HAS APPEALED AGAIN.
>>IT MAKES ME SHE HAS APPEALED AGAIN.
>>IT MAKES ME WANT SHE HAS APPEALED AGAIN.
>>IT MAKES ME WANT TO SHE HAS APPEALED AGAIN.
>>IT MAKES ME WANT TO KEEP>>IT MAKES ME WANT TO KEEP>>IT MAKES ME WANT TO KEEP
FIGHTING. FIGHTING. FIGHTING.
>>FIGHTING.
>>Reporter: FIGHTING.
>>Reporter: FIGHTING FIGHTING.
>>Reporter: FIGHTING LIKE>>Reporter: FIGHTING LIKE>>Reporter: FIGHTING LIKE
MATTIE. MATTIE. MATTIE.
>>MATTIE.
>>SHE MATTIE.
>>SHE IS MATTIE.
>>SHE IS SO MATTIE.
>>SHE IS SO STRONG.>>SHE IS SO STRONG.>>SHE IS SO STRONG.
>>>>SHE IS SO STRONG.
>>Reporter:>>SHE IS SO STRONG.
>>Reporter: HOPING>>SHE IS SO STRONG.
>>Reporter: HOPING WHEN>>SHE IS SO STRONG.
>>Reporter: HOPING WHEN SHE>>Reporter: HOPING WHEN SHE>>Reporter: HOPING WHEN SHE
BLOWS>>Reporter: HOPING WHEN SHE
BLOWS OUT>>Reporter: HOPING WHEN SHE
BLOWS OUT THE>>Reporter: HOPING WHEN SHE
BLOWS OUT THE CANDLES>>Reporter: HOPING WHEN SHE
BLOWS OUT THE CANDLES HE>>Reporter: HOPING WHEN SHE
BLOWS OUT THE CANDLES HE IS>>Reporter: HOPING WHEN SHE
BLOWS OUT THE CANDLES HE IS NOT BLOWS OUT THE CANDLES HE IS NOT BLOWS OUT THE CANDLES HE IS NOT
PUTTING BLOWS OUT THE CANDLES HE IS NOT
PUTTING OUT BLOWS OUT THE CANDLES HE IS NOT
PUTTING OUT HOPE BLOWS OUT THE CANDLES HE IS NOT
PUTTING OUT HOPE FOR BLOWS OUT THE CANDLES HE IS NOT
PUTTING OUT HOPE FOR A BLOWS OUT THE CANDLES HE IS NOT
PUTTING OUT HOPE FOR A CURE. PUTTING OUT HOPE FOR A CURE. PUTTING OUT HOPE FOR A CURE.
INSURERS PUTTING OUT HOPE FOR A CURE.
INSURERS ACROSS PUTTING OUT HOPE FOR A CURE.
INSURERS ACROSS THE PUTTING OUT HOPE FOR A CURE.
INSURERS ACROSS THE COUNTRY PUTTING OUT HOPE FOR A CURE.
INSURERS ACROSS THE COUNTRY ARE INSURERS ACROSS THE COUNTRY ARE INSURERS ACROSS THE COUNTRY ARE
GRAPPLING INSURERS ACROSS THE COUNTRY ARE
GRAPPLING WITH INSURERS ACROSS THE COUNTRY ARE
GRAPPLING WITH WHEN INSURERS ACROSS THE COUNTRY ARE
GRAPPLING WITH WHEN TO INSURERS ACROSS THE COUNTRY ARE
GRAPPLING WITH WHEN TO COVER GRAPPLING WITH WHEN TO COVER GRAPPLING WITH WHEN TO COVER
THE GRAPPLING WITH WHEN TO COVER
THE DRUG. THE DRUG. THE DRUG.
ACCORDING THE DRUG.
ACCORDING TO THE DRUG.
ACCORDING TO THE

2 Replies to “Toddler fights for access to “World’s Most Expensive Drug”

  1. Anything that could save a life should not have such a ridiculous price! This is a baby! In the name of Jesus give this precious child what she needs! Prayers and healing for this beautiful baby girl.

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